Continued from 'Hitting Crisis Point' and my PIP post...
Sorry it's taken a while to post this. I wrote it but was too drained to draw an image for it. The weekend was so exhausting I still don't feel up to drawing about it, so I'm just gonna post and I might add drawings later.
By midday we'd spent hours with the Crisis Team and even longer on the phone with Atos and DWP staff. I was exhausted and disconnected, and my husband was running out of energy too. Yet he had more to do. As we still hadn't been able to contact my boss, he phoned again, although my boss didn't ring back until later in the afternoon. They had a chat about my condition and we thought nothing more about it. We didn't dwell because we were still waiting for the psychiatrist who'd added me to his list of home visits.
It was after working hours when the psychiatrist arrived and I'm not going to go through everything we discussed because I've been through the same discussion so many times since 3am on Friday morning. However, he discussed my history and what was happening at present. He scored me. He inhaled, lifted his head and said "You're more than severely depressed."
I didn't know whether to laugh or cry. Finally, someone had said what I'd been trying to get people to believe for months and months. I also have an Avoidant Personality, apparently, although I'm not sure about that. It's something that needs looked into. I've looked up both Avoidant Personality Disorder and Borderline Personality Disorder, and while I do have a number of Avoidant traits, I'd say I had far more Boderline traits, but I'll discuss that another day. Either way, I was believed. Someone looked at me and confirmed I was right. Despite often feeling I'm not bad enough for help, I am "more than severely depressed".
The psychiatrist left me on Sertraline for depression but he added Diazepam for anxiety, that will be a temporary thing until a treatment plan comes into affect, but hopefully it'll help. He also prescribed Zopiclone to help me sleep. What a cocktail of drugs for someone who avoided antidepressants for sixteen years. But I'm not fighting it anymore. My condition has long since become a disability and I need to accept any help there is.
That was Friday night. The doctor also arranged for a nurse to come out and see me today, Saturday (I might post this in a few days, but trust me, as I write it's Saturday). The nurse cane in the morning, he was lovely, reconfirmed a few things about the Crisis Team and told me I'd get copies of my assessments and treatment plan which I could then show anyone who needed to see evidence of my condition. I was in an ok mood then. Not like a normal person, but for me. The Zopiclone and finally getting help had allowed me a better nights sleep and even though I still felt a bit disconnected, I was alright. When he left, I retained a little of the previous night's relief.
Then the post woman knocked on my door and hubby had to sign for a letter... from work. Human Resources are not happy that I didn't phone them on Thursday. They've arranged a meeting at work for November 3rd despite knowing I can't attend meetings. They've said I can take another employee in with me... a colleague I haven't seen since March, despite knowing all communication really needs to go through my husband because I can't cope. They haven't asked if there was a reason I hadn't phoned. They didn't try phoning me before sending the letter. What they fail to appreciate is that I was not well enough to phone them on Thursday, although my husband had tried to contact my boss. I was heading towards crisis point and as much as they have concerns about the impact of my illness on the business, my priority has to be surviving another day.
The letter talked about occupational health meetings, about being obstructive, about termination of my employment on grounds of ill health. I have a disability. What they're asking of me I can't provide. I can't attend those meetings any more than a paraplegic can walk up the stairs. I'm trying to get better. I'm seeking help, but I can't tell them when I'll be better. The Department of Work and Pensions defines a disability as 'a physical or mental impairment that has a substantial and long term effect upon your ability to do normal daily activities'. My depression and anxiety is a disability, and at the moment it seems I'm going to me dismissed for that, because at present work are asking me to do things I just can't do and not giving me the time I need to complete my treatment.
I understand it's a difficult one for work. I'm the only person in my role and they can't wait forever. At the same time, I have a disability which I am actively trying to recover from enough to function. I'm not pulling a sicky so I can go to the cinema and see friends every day rather than working. I'm on sick leave because the idea of getting in a car and going among other people makes me want to end my life. I hate myself so much and these letters are adding to that. If someone walked up to a person in a wheel chair and tipped them out, the word would have a problem, yet it's somehow acceptable to send accusatory and stress inducing correspondence directly to someone with mental health issues even though you've been told she can't communicate well at the moment and you should contact her husband. What double standards is that?
What people continually fail to appreciate is that those letters, have. Consider the following phrases: 'assessment', 'capability meeting', 'you did not contact me as requested', 'in light of your refusal', 'medical capability', 'little likelihood of return within a reasonable timescale', 'notice of termination of your employment', 'if there is any relevant information which you believe we ought to consider, then it is in your own interests to make it available to us for the meeting', 'confirm that you are able to attend no less than 72 hours prior to the meeting to facilitate travel arrangements', 'obstructive', 'failure to respond', 'impact of your absence on our organisation or resources', 'I trust you understand the reasons behind this letter, as we do have sympathy with your situation and I have no wish to worry you at this difficult time. However, we do need to consider the operational needs of the organisation and consider what decisions need to be made.'
Those words cause anxiety, feelings of failure, depression, self loathing... they push me when pushing could cause my death. I know I'm blunt about that, but it's where I am these days. I can be blunt about suicide because thoughts of it are my daily companion and one trigger could see me back at crisis point or dead. You can't assess a paraplegic on their failure to walk, so why is it ok to assess someone with mental health issues on their 'failure to respond' especially when you've been neglecting to try her mobile or hold conversations with her husband? It's discriminatory, but because I have an invisible, mental illness, it's accepted.
Telling me I failed to respond is a bit like telling a one armed man he failed to clap his hands. Only in this case it's worse because I didn't ever receive the letters they wanted me to respond to (or, incidentally, any payslips or tax documents) since March and they didn't try ringing my mobile, a number they've had for the duration of my employment, until last week. A number that is answered when it is called, by my husband if not by me.
I'm not being obstructive, not anymore than a man with a zimmerframe is obstructive because he's blocking the corridor walking slower than able bodied people have patience for.
It's not that I'm refusing further assessments. That implies a choice. It's that I can't face further assessments, not when I'm already barely coping with seeing my GP, the Community Mental Health Team, the Crisis Team, PIP... I just can't do it. Does a blind woman refuse to see? No, she just can't do it.
As for returning within a reasonable timescale, what is reasonable? Before or after I stop feeling like driving my company car off a cliff during my daily commute? Before or after walking in front of a reversing truck on a building site seems like a good idea? Before of after I recover my ability to answer a phone call? Who assesses what a reasonable timescale for recovery from a disability is?
As for providing evidence as it's in my own interests, how threatening does that sound? They've had my sick notes. When my sick notes failed to be delivered, HR phoned and my husband emailed copies of them to the relevant person. My doctor knows I'm not fit to work, what evidence could an HR Business Partner and Business Manager interpret better than my doctor?
They want me to confirm attendance with more than 72 hours to spare so that they can arrange travel. They, the people who can manage to drive or use public transport. I don't know if I'm going to be fit for a meeting 72 hours in advance. I could agree and then be floored by a panic attack on the day (likely) or disagree because I'm having a bad day them be ok 72 hours later (even though that's less likely). Once again, they're asking me to do something my disability prevents me from doing. All I can do is say I can't attend. And then no doubt they'll say I've 'failed' to do what's necessary. That I 'refuse' as though it's a choice. Or that I'm being 'obstructive'. All verbs and adjectives that would be deemed discriminatory if used to describe the impairments of physically disabled people.
But I guess that it's ok to discriminate against those who can't attend meetings. Who can't say, go and see a solicitor to discuss the possibility of legal action. It's easy to discriminate against people whose disability is mental because they're less likely to have the ability to fight. But that isn't solely a problem within business, its a problem within society and the government. People don't understand mental illness. There's still so much stigma attached to it... We're unusual so people fear us. We're vulnerable, so people discriminate. That's something we have to deal with alongside our conditions.
Pseudonymous Zombie
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