Showing posts with label borderline personality disorder. Show all posts
Showing posts with label borderline personality disorder. Show all posts

Monday, 15 May 2017

Stigmatised

The stigma attached to mental illness can make every day feel like a battle. People with a mental illness are often seen as liars, manipulators, or lazy benefits cheats. We're supposedly psychos and abusers; people no normal person would want in their lives. It doesn't matter that such descriptions are more often wrong that right, the notions persist and as a result the most vulnerable members of society are met with disbelief, disgust, and even anger. And that's if we aren't just dismissed outright.

Whether it's the friend who is 'done' because your mental condition makes you process things differently, the family member who says 'you're more trouble than your worth', the doctor who says 'we can't change your personality', the CMHT nurse who discharges you because you aren't 'engaging', being cast adrift is a common problem for patients. It's a lonely place to be. A place where even community mental health teams can gaslight vulnerable patients into believing there's nothing wrong or they just aren't trying hard enough. Family members abandon family members. Support networks disintegrate and people who are already suffering become costly statistics and nothing more.

We need to put more work into helping rather than condemning. Condemnation exacerbates the problem, creating a situation where already desperate people become ever more desperate. We need doctors and nurses to be up to date with current understanding and best practise. We need support groups for both patients and their families to ensure support networks say strong and have access to factual information rather than internet fallacies. We need more community facilities. We need more well trained nurses and psychiatrists. We need more counsellors and we need to stop limiting the number of sessions of talking therapy that patients can access as the current system allows people to be 'written off'. We also need to protect sufferers from discrimination, including in the workplace and by health professionals. People need to feel safe and supported, in all aspects of their lives.



Then there's moronic morning TV presenters who think they understand mental health better than doctors, nurses, and mental health advocates, spouting nonsense which encourages further stigmatisation and prejudice. When you make 'liars' into a bigger issue than 'sufferers' you allow the belief that people are faking to dominate the discussion. You breed discontent and allow claims to spread that the sick are lazy cheats, content to live off hardworking taxpayers money.  Of course, there are a MINORITY of people who misuse any system, but the vast majority of people using welfare are genuinely in need. No one would choose to live off £600 a month if they had a choice. It's bloody hard to do!

Many claimants have worked in the past and would work again if they could. They paid into the very system which they've since come to rely on. That's how the welfare system is supposed to work. When you can, you pay in, then if you can't, society will help you survive. Instead, we allow this myth to spread that claimants get thousands of pounds off the government and have no interest in work, and then the very people we should be helping become targets. The vulnerable become victims of a system set up to drag them under and no one defends them because everyone is too caught up in being outraged by fallacies. We need to stop encouraging an environment where people feel ashamed of, or feel the need to hide, their illness.

We need to start thinking about how we talk about mental illness, then we need to make some changes to what is 'acceptable', especially what is acceptable for public figures to say.


  • LISTEN.
  • DON'T DISMISS EMOTIONS AND EXPERIENCES AS UNIMPORTANT.
  • DON'T AUTOMATICALLY ASSUME A PATIENT IS LYING OR MANIPULATING.
  • LISTEN MORE. DO SO CAREFULLY AND WITHOUT JUDGMENT.
  • STOP USING DISCRIMINATORY WORDS LIKE 'CRAZY', 'PSYCHO', 'NUTS', ETC.
  • DON'T ASSUME PEOPLE ARE BEING DIFFICULT WHEN THEY SAY THE CAN'T DO SOMETHING. YOU WOULDN'T TELL A PARAPLEGIC THAT THEY JUST HAD TO THINK POSITIVE AND WALK, SO STOP TELLING THOSE WITH SOCIAL ANXIETY TO GO OUT/ANSWER THE PHONE, ETC.
  • ENCOURAGE OPEN DUSCUSSION BUT DON'T PRESSURE ANYONE INTO TALKING IF THEY DON'T FEEL ABLE.
  • DON'T ACCUSE PEOPLE OF NOT ENGAGING. IF TREATMENT ISN'T PROGRESSING, LOOK INTO ALTERNATIVES RATHER THAN ABANDONING YOUR PATIENT/FAMILY MEMBER.
  • LISTEN. I KNOW IT'S IN THREE TIMES, BUT IT'S IMPORTANT THAT THE PERSON WITH THE ILLNESS HAS THEIR THOUGHTS ON THEIR CONDITION AND THEIR TREATMENT ADDRESSED.
  • DON'T SPREAD MYTHS. THERE'S MORE THAN ENOUGH MISINFORMATION OUT THEIR FROM ANGRY EXS AND PSEUDO-SCIENTISTS AND 'HEALERS' WITHOUT ADDING TO IT.
  • DON'T JUMP TO CONCLUSIONS BASED ON A LABLE. YOU WOULDN'T JUST A PERSON BECAUSE THE HAD CANCER OR EVEN SOMETHING MINOR LIKE A HEADACHE, SO WHEN SOMEONE IS BRAVD ENOUGH TO SAY THE HAVE DEPRESSION, SCHIZOPHRENIA, BIPOLAR, BORDERLINE PERSONALITY, SOXIAL ANXIETY, OR PHOBIAS, ETC, DON'T JUDGE THEM. I HAVE BORDERLINE PERSONALITY DISORDER, BUT THAT IS ONLY ONE PART OF WHO I AM, AND IT'S A PART I TRY TO CONTROL.
  • IF YOU'VE HAD A BAD EXPERIENCE WITH SOMEONE WHO SUFFERS MENTAL ILLNESS, SEEK YOUR OWN HELP AND SUPPORT, BUT DON'T TAR EVERY PERSON WITH A SIMILR ILLNESS  WITH THE SAME BRUSH.
  • REMEMBER THAT THOSE WITH MENTAL ILLNESS WANT TO BE BETTER. THIS IS NO FUN FOR US EAITHER.
  • LISTEN. IF WE'RE TALKING, IT MEANS WE TRUST YOU TO SOME DEGREE. THAT'S A GIFT, SO LISTEN.
  • REMEMBER, WE'RE PEOPLE TOO, AND THAT'S WHAT MATTERS.
  • STOP JUDGING, AND LISTEN.
Pseudonymous Zombie
xxx

Sunday, 6 November 2016

Lonely

I am lonely.

That's nothing new for someone with depression, the sense of being alone. In many ways I'm lucky; I have a loving husband and two wonderful children who keep me occupied. I love them, they love me. I'm lucky. But like so many sufferers, I can feel alone even in a crowded room.

When I'm empty, I believe no one can possibly understand the hollow feeling in my chest. No one (except my children) can get close to me because I'm so closed off. When I'm anxious, I can't explain the panic I feel from simply being close to other people, or from being surrounded by raised voices - even voices raised to joke or express joy, rather than anger or hate. I feel alone, because I can't put my emotions into words.

I should be able to explain. I write novels. I'm told I write emotive novels. But when it comes to my own feelings, it's not so easy.

A lot of the time, I'm not sure I want to put what I feel into words anyway. People, family, have turned from me before because of what I feel and I'm scared that if my remaining friends see the true me, the broken me, they'll leave too. It would be justified. They should leave me before I hurt them or hold them back just by being me. So I hide. I distance myself. I slip off the radar before I can be found out and cause distress to myself and them.

Unfortunately, I become more lonely because of my retreat, my self-imposed seclusion. Worse, though, I know I probably hurt my friends by pulling away. Perhaps they think I don't care enough to visit or pick up the phone. Perhaps they think I'm being selfish or that I've abandoned them.

Those fears reinforce my self-hatred as guilt runs riot in my head. I hurt people. I don't deserve people. I know hose around me deserve better than I can offer, yet I want to have friends. I want to feel close to people.



I think that's why I'm lonely, the conflict between craving and fearing proximity. I crave closeness but dread both abandonment and causing my loved ones to hurt.

I guess it's natural for lonely people to reach out to others in times of crisis. but that's become circular for me. It's a cycle I can't break.

Push away. Pull close. Push away. Pull close.

Classic borderline, I guess, on top of the never ending depression - the depression I can't remember being without. I know I'm difficult to understand. A lot of the time I don't understand myself.

I do have a message though, to my friends: I love you. I love you so very much that it hurts. I'm terrified of losing you and terrified of hurting you, and I hate myself because I'll probably do both. Experience has taught me that's just what I do. I'm just a horrible person. I must be, for my peers to hate me as much as they did throughout my childhood, and for others to tell me they didn't want me or to decide I'm not worth their time. You're better off without me, but believe me when I say I love you, I'm sorry, and I want nothing but the best for you.

I love you.

Pseudonymous Zombie
xxx


Saturday, 29 October 2016

A Tale of Ink, Labels, and Closets

This is going to be a long one, sorry, but bear with me as I have a lot of ground to cover...

Thursday was my birthday, I turned 31. A friend paid for me to get two new tattoos which I designed over a year ago but never had the money to get. That brings my total number of tattoos up to four, each designed by me, each meaningful. All reminders of strength, a willingness to fight on, the strength of my ancestors, or of my own achievements. They're positive things for me, it's a creative process I enjoy and my tattoos are always there to remind me even pain can create beautiful end results. But this trip was even more monumental, because its the first time I've left the house in longer than I can remember.

Standing in the street was both wonderful and horrific. Seeing the autumn leaves and feeling the cool of the breeze was excellent. Being among people, cars, buses? That was terrible, anxiety inducing, and on top of that walking made my back pain play up which hurts a lot more than any tattoo. Calling into the chemist was truly horrible. My husband had to ask for what I needed (cream for tattoo after care) because I couldn't speak to the pharmacist. I just stood behind him, feeling like the pharmacist as suspicious of my motives even though I wasn't doing anything wrong, we'd never met before, and I know such thoughts are just my condition playing tricks on me. Feeling judged is part of my social phobia and it makes interaction with others a constant and exhausting challenge.

Actually getting the tattoos was great, however, because I went to the artist who did my last tat. She seems to have a lot of similar interests to me and the hubby, and she is far easier to talk to than I find many people. Sure, I over-analysed everything I said, but it was good. I achieved something. I both talked to someone and achieved going out to do something. That's progress.

But it's also when things got more complicated.

See, my mam, who I adore and who is one of my best friend (along with hubby) doesn't like tattoos. She vocally and visibly doesn't like tattoos. Neither does my mother in law, although she's no longer vocal. I saw the expressions of tight-lipped disapproval from both of them, and that caused anxiety to build rapidly.

Disapproval makes me nervous; I've lost enough people to fear disapproval, but at the same time I've survived losing enough people to know that - over things I find positive, things that help me and hurt no one else - it's my opinion that matters. It's my body. It's my self-image. It's my self-expression.

With everything else I'm a protector; I hide away more than you'd expect from someone with tattooed forearms. I hide my self-harm from most people and especially my kids, because I know they need stability (incidentally, since crisis team intervention I've been almost self-harm free). When I argue with my husband, we restrict it to when the kids are asleep or staying at their grandparents, we hide the problems. Providing safety and stability for my children is my utmost priority, just as it is my husbands, so I hide the ill, desperate side of myself away.

Some days that means hiding a lot. On others not so much. But creative outlets help (part of the reason I write novels, actually, and why I do illustrations for this blog), so to be able to get tattooed and express a part of me openly is nice. It's a bit of freedom when I often feel I need to hide, imprisoned by my depression, anxiety, phobias, the stigma attached to my sexuality, and as of this week, my newly diagnosed Borderline Personality Disorder.



BPD. I needed the diagnosis to get suitable treatment and so that I understand the need to step back when emotion takes over so I can gain objectivity. However, I needed another 'label' and the attached stigma about as much as the world needs Boris Johnson - Not at all.

To me, it's something else I'll have to hide from most people, because there's so much negativity attached to it. You just need to google 'BPD parenting' to be persuaded BPD mothers always destroy their children because they are incapable of putting them first, because they're narcissists, selfish, and inherently abusive people. One 'therapist' even claimed on twitter that BPD parents were incapable of loving their children.

How offensive is that? And no, this isn't an unjustified BPD rage. I'm calm right now. I'm rational. But as peer abuse (you might call it bullying) undoubtedly had a profound affect on my development and subsequent mental health problems, I strongly disapprove of false, stigmatising statements that misinform and may cause others to be judgemental towards a person they know nothing about. That particular 'therapist' seems to make so many black and white statements that she sounds more BPD than me.

And here's the thing: I CAN and DO love my children. I love them more than anything. I love my husband. My mam. My friends, even if I don't see them as often as I should. BPD is wrongly seen as an illness which prevents emotion and empathy, but that's just not true. Maybe some sufferers have disconnected so completely as a reaction to their heightened emotional state, but that's not true of all. In truth, BPD means I feel things MORE, not less, and that's true of a great many of us. Probably the majority, to be honest, otherwise it would seem more accurate to disgnose Anti-social Personality Disorder, which does include a lack of empathy. Or at least Narcissistic Personality Disorder which is characterised by caring only for ones own needs, at the detriment of others.

I'm hurt easily, yes, and my temper can burn brightly, although usually only when provoked into defending a loved one. My temper flares when I'm defending my mam, my husband, or my children, (or, for some reason, defending the following of best practise procedures at work). Most of my major arguments with my husband have been over something he's done which has risked our family home and/our our kids wellbeing (financially). For example, his panic when he was made redundant led him to acquiring debt and going into mortgage arrears which he didn't tell me about. I didn't know until the mortgage man turned up on the doorstep (while I was home alone and 36 weeks pregnant), and then when debt collectors started ringing. Once I knew, I sorted the issues, but I was furious, and I did do the 'I hate you, don't leave me' thing then.

My condition also means I worry intensley about my children. so much so that the first time my five year old crossed the street on her own to go and 'seek' a friend, I felt ill. I was breathless and nauseous even though I could watch her cross the streetvto ensure she was safe. But guess what? I didn't put my own emotional needs first, before my child's development. I didn't act as the internet claims a BPD person would inevitably do, and satisfy their emotional needs first and foremost. I let her cross the street, knowing we've taught her road safety and knowing that she has to be allowed to grow without having my fears pushed on her.

She's at the age where she wants friends outside the home, and she loves the girl across the street who is two years older than her. I'm fine with that. That's my daughter growing and I'm pleased she has friends and has fun interacting with other children, because I wasn't much older than her when the peer abuse started in my life and did huge harm, harm I never want my children to face.

That's what I do. Bury my anxiety so my kids can have a bright future, then let it out when they can't see, or hear, or through writing and art. So much of what I've done, right down to my hobbies are about conquering irrational fear/anxiety specifically so my kids can have wonderful experiences without me projecting my anxiety onto them. I started to swim and kayak, my husband's hobbies, despite anxiety about drowning, which I inherited from my mam. I did this specifically because I will not allow my irrational fears to be passed on to my children. I want them to swim, to learn water safety, to go on adventures with the scouts (if they wish). Or they can travel. Dance. Write. Be doctors. Soldiers. Pilots. Midwives. Ice Cream Van Owners. I will not allow my emotional insecurity to dictate my childrens' futures or destroy them... Yet the internet claims I will always put my needs first.

Truth is, what I need is for my children to live happy lives, content with themselves and their achievements, which is something I rarely feel for myself.

Additionally, there is no preferential treatment in our house, despite what is said about BPD parents 'splitting' their children into the 'good' one and the 'bad' one. There is also no violence or emotional abuse. We're the sort of household where the concept of a smacked bottom is a game, not a punishment, because it isn't a genuine threat. We use non-physical methods of teaching our children right from wrong. We use time outs ( though not often), refusing treats (again, rarely needed), etc. And my husband and I work together to ensure continuity of discipline and care. We both treat both of our children the same.

Despite what the internet claims about BPD parents, I do not use my children to hurt my husband; I'll leave using kids as weapons to my younger brother. He's very good at that, but I don't have the stomach for such behaviour. I do not rely on my children to make me feel loved, either. Sure, it hurts when they say they don't want me or that they 'aren't my best friend', but I also understand that's normal three year old behaviour.  I do not rage at my children either, because they are my world. See, although I meet the criteria for BPD, I am not the self-centred monster some would have you believe.

I will always put my children first, even when it comes to my phobias. I'm petrified of strangers and dogs, but I will always stand between my children and stray dogs or unsavory looking characters. My fear does not come before protecting them because I love them and they deserve to come first. They are so much more important to me than I am to myself.

During the economic downturn I was made redundant, the week I had our daughter, our eldest child. Despite that, I set up a business. I worked for years, for next to nothing, for no emotional or health benefits, just to keep a roof over my childrens' heads. I even worked via my tablet while in a hospital bed, waiting for an operation, because what I was doing would pay for my children's food, clothes, and trips out. And I only took two days off after my operation Everything I do is for my children, but the stigma against BPD suffers would state this can't be true. It'd claim I must be lying. But I'm not lying. I'm not manipulating. I'm not perceiving things differently from how others see them, and I know this because it is other people who tell me I'm caring for my children, even when my sense of worthlessness makes me feel I'm failing them.

The 'claims' we've read recently about BPD have upset my husband as much as they upset me, because they aren't accurate. Not all BPD sufferers are narcissists. Yes, some have narcissistic traits. I have more avoidant traits. Do you know what that means? I'm more of a people avoider and then people pleaser than a people user. Narcissists have used me because I am constantly worried about what other people think and feel and seek to please. When I make mistakes, I apologise. When people need me, I'm there. I've spent all night talking a friends out of suicide more than once, even while suffering suicidal ideation myself. I am not an unfeeling narcissist. What I am is often over-sensitive, often empathetic individual who often cares too much rather than too little.

There are website after website of people discussing their 'psycho' and 'manipulative' BPD exes, and while I'm sure some BPDs are abusive to be involved with, that could be for any number of reasons. Maybe they have a more severe case. Maybe they have co-morbid Narcissistic Personality Disorder, or narcissistic raits. Maybe they are in denial about their condition. I don't know. what I do know is that the descriptions are not representative of every BPD sufferer. Why? I suspect because many of us are too afraid of negative backlash to discuss our problems and how the affect us, and if our partners are happy with us they don't need online support forums and so no one sees that side of the coin.

But there is a flip side.

Guess what? I'm self aware. I know my flaws and I'm getting help for them. To some who claim to understand what BPD means, that might come as a surprise. in fact, they may somehow twist that statement in an attempt to prove I'm manipulating you, my readers. But I'm not. I wear my heart on my sleeve. this blog is about honesty. Brutal honesty.

I've always understood aspects of my personality, even before it was given a label. That understanding has allowed me to sustain a loving and committed relationship with my husband for nearly thirteen years (and we're stronger now, despite my problems, than we were a year ago). It's allowed me to begin raising two beautiful children who are both doing well at school/nursery, who are openly affectionate but also confident in expressing their personal preferences and beliefs, who behave exactly like normal five and three year old children - and I know this because they're constantly watched by our family of teachers, special needs teaching assistants, and people who've studied child development.

I am not damaging my children. Why? Because my mental illness is treated as equal to a physical ailment by my support network. I do not depend on my children and I have the support of both family and trained professionals. Which brings me to my point, BPD parents can be good parents, but stigma allows the circulation of misinformation which means people with an illness are discriminated against rather than helped to live fulfilling lives. We need to start treating mental illness like other illness. Diagnose. Treat. And do not blame and accuse the patient. You wouldn't accuse someone with a physical illness of being unfit to parent just because of their diagnosis, you would see how they managed their illness first. It's time we did the same with mental illness.

Remember, most crimes (including domestic/child abuse) are committed without the culprit suffering mental health issues. My BPD doesn't mean I'm abusive, just like anothers lack of mental illness doesn't guarentee them not to be. We MUST stop demonising what we personally don't understand or have not experienced. That goes for invisible illnesses, disabilities, sexuality, gender indentification, all of it. Just stop. It's wrong. It's unnecessary. It does more harm than good.

It's also the reason I might choose to stay in the closet about suffering BPD. I'll talk to my doctors, my nurses, my mam, and my husband - those people I need for BPD/Depression treatment to work. I'll even talk to twitter about my conditions, but only under a pseudonym for now. But I won't put that diagnosis next to my real name in public. No more than I tell the general public I'm bi-sexual.

That is, actually, pretty much how I deal with my sexuality as well. I'm open to talking anonymously - campaigning to #endstigma, even - but not to those know me. Family wise, only my husband and mam know about my bi-sexuality. My husband in much the same as me (although he's told none of his family yet, and may never). My mam reacted to my revelation (only last year) as she would to a tattoo; with displeasure and eventually an unwillness to discuss it at all. That left me feeling as though part of me is wrong, broken, not quite right. Much the same as many think of mental illnesses, to be honest.

Not that it'should my mam's fault. She is from a different generation, that'sounds all. She doesn't stigmatise others but she isn't thrilled at knowing I falling under the LGBT label. Straight is easy, simple, understood. I guess that's why a lot of parents want their kids to be straight; it's easy and isn't stigmatised. But the world isn't fair or easy onavigation people. Sometimes it's a struggle.

Such is the life of the zombie in the closet; I have ever more to hide because of unjustified stigma. Learning to accept myself is hard when others don't accept me, but what the hell; this is the hand I've been dealt. But goodness, I hate labels.

I'm a person, not just #BPD, #LGBT, or #Inked. it really is time we ended all stigma; about mental health, sexuality, gender, body modification, all of it. Don't judge people because of the myths surrounding a label. Get to know them. Don't stigmatise; there are shades of gray (and a rainbow of colours) which require understanding, empathy, acceptance, and/or support, but not outright vilification (and that's from a 'black and white thinking' BPD). Based on the stigma around my labels I should be a narcissistic, abusive, greedy, promiscuous, thug. Yet I'm not. I'm an empathetic, overly-protective woman, who has been with the same man since she was 18, and who has psychological scars left over from going through years of torment herself, and who is actively engaged in getting treatment for those scars to get back a normal life.

For most of my life I've been 'high functioning'. I'm in a stable, traditional marriage. I've worked since I was 16. I am capable of critical thinking, even if SOMETIMES I might need a night to get an emotional reaction under check first. I am not my Recurrent Depressive Disorder, nor am I my Borderline Personality Disorder, or my bi-sexuality, or my tattoos. I am me. Nothing more and nothing less, and I am formed from 31 years of experience and learning, I am not a stereotype.

Pseudonymous Zombie
xxx

Saturday, 22 October 2016

The Untreated

When I saw a psychiatrist last week, he himself said I was 'more than severely depressed'. We discussed anxiety. Agoraphobia. Social phobia. Avoidant personality. I thought I was finally properly being diagnosed. Then I received his written report, which stated I have recurrent depressive disorder but "there was a report of self harm behaviour and anxious avoidant strategies, however there was not enough evidence to formulate a diagnosis of comorbid personality disorder". That diagnosis, or lack thereof, is disheartening.

And no, it's not that I want another disorder. It's that I believe there is more going on and I feel like that's being ignored. I constantly feel like I'm screaming, screaming for help as the darkness creeps around me and light recedes. Screaming, even though it's hard to speak, or even to breathe. People hear me but they turn away. They hear me, but they don't have time to help. That leaves me feeling hopeless.



I wanted my GP to check for other disorders months ago, but there just arent enough community psychiatrists to see me based on what I think are possible conditions. I wanted to discuss it with the CMHT nurse who initially assessed me, but again, discussing it is really a no go until I'm assigned my CPN and my treatment really starts. That's why I'm attempting to inform myself about the possibilities.

I know self-diagnosis is not advised, but after 22 years of asking for help it's inevitable that I've done my own reading, so I have ideas, but I'll discuss them after I've gone over a few other comments in the psychiatrist's report which left me feeling deflated.

"Crisis team to monitor for 7 to 10 days", I'm already on day 8 and I now feel I'm running out of time for help when I haven't yet been given my community psychiatric nurse. Will I be abandoned again in two days time? I know the Crisis Team is as its name suggests, it's for crisis not long term treatment, however, if they discharge me before other help is in place I know I'll end up back at crisis point. I've thought about it so many times this week. And I'm not sure how many times I can go through the cycle before I lose faith in there being help again. 

If I'm discharged from the crisis team before I have a CPN, I think I'll give up. I won't phone next time I feel like killing myself. What would be the point if the help I need never comes? That though leads to my next extract from the psychiatrists letter.

"No further medical input required". What does that mean? I need medical input. I need to know for sure if there is something else. I need the depression and anxiety to be treated so I remember how to live.

Last night I had a panic attack, when it east I ended up wandering the house looking for a way to kill myself as I no longer have access to car keys or pills. I had a plan to get an extension cable and hang myself from the banister. Matt had to phone the crisis team for me again. Talking to them helped, but it's a new method of coping. It's novel. Sooner or later I'll need more. 

What do I need to do to get continued help from people who'll listen to me? Do I have to make another suicide attempt? Because if it comes to that, it won't be an attempt. It won't be cry for help, it'll be a determined attempt to die. And that's the head space I was in last night.

Here's the thing... My brain tells me I should be dead all of the time, constantly, and I want it to stop. I would die just to make it, and my self-loathing and self-doubt, stop. That means I need help, right? But help is hard to get. I'm in a cycle and it feels like the only way to get off the ride is by dying.

That's everyday life for me, however, so lets ignore the nagging suicidal thoughts for a moment and focus on "not enough evidence to formulate a disagnosis of co-morbid personality disorders." That's what I want to discuss.
There is a disorder I suggested to my GP, Borderline Personality Disorder, although she didn't seem overly interested in investigating. Here's why I think it's worth taking a look at...

Borderline Personality Disorder (this list of indicative/diagnostic questions is from the NHS website):

- Do you have an intense fear of being left alone, which causes you to act in ways that, on reflection, seem out of the ordinary or extreme, such as constantly phoning somebody (but not including self-harming or suicidal behaviour)?

Yes, I do this. I'm terrified of being abandoned. There are days when I'm irrationally furious with my husband and I'll scream at bim to leave. Then stand in the door so he can't, because I'm afraid he won't come back. I'll promise friends more than I can manage because I'm afraid of losing them if I say I can only manage less.

I'm a self published author, but in the past year but at times I've barely written because I've been rewriting somone elses chapters for them because I felt obliged to keep her happy and keep her friendship. As it is, that friendhip has now ended so I'm no longer rewriting her book for her, but I did get drawn into that trap for the better part of a year.

Even two weeks ago, when we were barely speaking as I'd learned how manipulative the person was, she messaged asking me to read over a short story. She hadn't spoken to me in weeks but she wanted a favour. There was no 'hello, how are you doing', just 'can you read this and give me feedback?' I spent three or four hours going through that story for her. I rewrote example paragraphs and made detailed suggestions. Then she went back to barely speaking again. Because my fear of being hated is so great I'll do things I'm not really up to, until I'm at breaking point and become angry, and push people away.

I also feel obliged to answer messages even when I'm in a situation where my phone should be off because I fear people will come to hate me if I don't reply. That's so stressful that I can only interact with a few people at a time. I barely write now because I'm afraid that if I take time for myself and stop messaging my few friends, I'll lose them.

And if I try to get in touch with someone and get no answer? I panic and keep ringing. If i upset someone I keep messaging, trying to explain, even though the flood of messages often make things worse rather than better. Sometimes I must look crazy (by that I mean out of control). I certainly feel it.

- Do you have a pattern of intense and unstable relationships with other people that switch between thinking you love that person and they're wonderful to hating that person and thinking they're terrible?

Yes. Not my marriage. Well, I have days where I can be loving and then believing I hate my husband. We've been together for twelve years and there have been some pretty unstable periods when our 'issues' clash, but he loves me, and I love him. He's one of the few people who can make me laugh.

The real unstable relationships are with friends and other family members. The friends I have, I idolise, but psst experience tells me that I can go from idolising to hating very quickly. There are a few I hope this would never happen with, and I hope they forgive me if it does. I'm really trying not to be the sort of person I seem to be. As for family members...

I supposed I must have idolised my dad at some point. We had a complicated relationship and there were a lot of times I hated him. It took until the last year, when he was dying, to be able to say 'I love you' again and mean it. It was the last thing I said to him.

Whereas the last thing I said to my brother was the he was an arsehole. That was the day after dad died and I was struggling. My anger was rearing up to protect me from breaking down and when we fell out it exploded. I apologised, but he wouldn't accept an apology. He then went on to tell me I only self harm to hold man hostage, which isn't at all true as mam often doesnt know when I'm self harming. We fell out. I fell out with my other brother too.

I hate them both.

I did love both of them. Despite our competitive streaks I idolised the older of the two and I adored the youngest. But now I hate them both, and they might as well have evaporated. And I decided that in a moment. I spent a while being heartbroken over the falling out, then one night I thought 'no, I hate them. I don't care what happens to them now', and the switch was flicked.

That's an unhealthy skill I have, the ability to flick from love to hate, I guess I learned it during the times when my dad walked away and wouldn't speak to me for six months at a time. Or maybe I learned it when friends left me because, I assume, they were fightened of being targetted by the bullies who were targetting me. I don't know. I just know I can press that switch.


- Do you ever feel you don't have a strong sense of your own self and are unclear about your self-image?
Goodness yes. At almost 31 I still don't know what I want to be. The best option is an author because I enjoy writing and it allows me to explore different facets of my character, of experience, and even work out how to be a better person. But as far of myself goes... I switched university course three times because my goals kept changing. What I aspire to keeps changing. A lot of the time I just don't know what I want.

- Do you engage in impulsive activities in two areas that are potentially damaging, such as unsafe sex, drug abuse or reckless spending (but not including self-harming or suicidal behaviour)?
I do spend recklessly. My husband is terrible with fiances so I have to control them, but that involves a battle with myself because I do impulse by a lot. Even when I 'plan' a big purchase, our version of planning is to discuss it without making plans other than 'we'll save up', and then one day I'll be in need of a pick-me-up and I'll say 'fuck it, lets get that'.

I also binge eat. My depression currently means I don't really have an appetite driving me to eat. I eat because my husband makes food. However, I do have a habit of going through stages when I'll go through every sweet thing in the house. My brother has shown his disgust before because I ate a whole Golden Syrup cake for breakfast. I can do that. Eat a whole cake. A family size bar of chocolate. A box of donuts. It's not a daily thing, but I go through periods of binge eating. I just don't admit it because I'm ashamed of it. I know it's tied up with my mental illness but I'm ashamed of it.

That comes back to stigma, though, doesn't it. There's a lot of media coverage on anorexia and bulimia, on how the media encourage those conditions and how people suffering symptoms of those conditions need help. But if the media shows an overweight person devour a whole cake, scorn follows. They're seen as greedy pigs. As a strain on the NHS. As people who don't deserve help because they're causing their own suffering. No one ever says 'this person has a mental illness and they need help'.

So I don't admit my dark, disgusting secrets about refusing dinner but then hiding alone eating a full family size packet of marshmallows. That's just stupid and disgusting, right? More so than vomitting after meals, which is part of an illness.

The media still sees eating disorders as starving because of distorted self-image or mental illness. They don't show that over-eating or over-eating junk food is also a reaction to distorted self image and mental health conditions. The person in the street often expresses the same bias. How can anyone admit binge eating is a problem for them when they expect to be met with disgust?

- Have you made repeated suicide threats or attempts in your past and engaged in self-harming?

Yes. Repeated threats, I've made one recorded attempt, family intervention has stopped several others, and in the last week crisis team involvement has stoped several. Ive self harmed for years. My left leg is scars from ankle to knee. I have scars on my other leg and my arms too.

- Do you have severe mood swings, such as feeling intensely depressed, anxious or irritable, which last from a few hours to a few days?

Yes. I'm in a severe depressive epidode at the moment with severe anxiety. An extended episode happens every few years, but between my them I'd consider myself to be emotionally unstable. I have severe mood swings that cause shorter term depression, anxiety, and anger. I can be ok, then at seemingly nothing I'll be suicidal, or anxious, or easily angered. Then I'll be ok again.

- Do you have long-term feelings of emptiness and loneliness?
Yes. All the time. It's one of the hardest parts of being me, the emptiness that just stays, stoping me from interacting or living like normal people. I can't remember not feeling lonely on some level.

- Do you have sudden and intense feelings of anger and aggression, and often find it difficult to control your anger?
Yes. This influenced my falling out with my brothers. It's affected my interaction with colleagues before too, and my husband.

- When you find yourself in stressful situations, do you have feelings of paranoia, or do you feel like you're disconnected from the world or from your own body, thoughts and behaviour?


I often feel paranoid that people are talking about me, laughing at me, or plotting against me, at othertimes I feel totally disconnected and yes, like my body is going through the act of living and interacting but I'm not really there.i also find it hard to remember things that go on while disconnected.

In the last week alone I've phone the crisis team because I've gone from managing to panicked nauseous or suicidal for no reason. I do have stressors at the moment, but this switch can happen for seemingly no reason too.

So, that's Borderline Personality Disorder, the indicators and my responses. I think that's my most likely disorder and would like that to be investigated, but I feel like having waited 16 years to help with depression (22 if you consider the years of migraines due tobstress before that diagnosis), that it'll be another 22 years before anyone listens to my suspicions that more is going on.

However, let's consider me as someone without BDP as the psychiatrist I saw didn't mention it at all. Let's consider Avoidant Personality Disorder instead, as an epansion of my anxious avoidant strategies which were noted.

Avoidant Personality Disorder (taken from this website):

As briefly aforementioned, people with AVPD will exhibit a variety of common traits and characteristics. Although these may vary slightly from person to person, generally avoidant personality disorder symptoms are quite specific. This does not mean however that someone who shows signs of avoidant behaviour has the disorder. Everyone from time to time may feel hypersensitive and antisocial, and only those who exhibit a number of AVPD traits can qualify for a diagnosis.

The most common avoidant personality symptoms are:

- Avoidance of occupational activities.

I've been on the sick for 6 months and I really don't want to go back. Does that count?

- Easily hurt and offended by criticism or disapproval.

Yes. Definitely. And I'll spend days going over and over critisism feeling worthless.

- No close friends.
No. I have a select group of close friends.

- Strong reluctance to get involved with other people.

Yes and no. I'd like to be involved but I don't know how to be without extreme anxiety inhibiting me.

- Strong reluctance to take personal risks or engage in new activities.
Yes. Definitely. Risks and unfamiliar situations cause panic attacks.

- Very shy in social situations.

Yes. Very. I'm known for sticking to my husband's side and staying quiet.

- Preoccupied with criticism.

Yes. See point two.

- Exaggeration of potential difficulties.

I wouldn't say I exaggerate, others might.

- Holding back in intimate relationships.

No. As far as intimate relationships go I'm an all in kind of person.

- Perception that they are socially inept.

I AM socially inept.

- Constantly using 'always' and 'never' statements.
I sometimes use always and never statements.

- Blaming others for creating a problem rather than dealing with the problem.

No, I'll deal with it while seething at the person who is to blame. At least I did until my current depression hit.

- Catastrophizing - always assuming the worst case scenario.
Yes. I do that.

- Depression and mood swings.

Yes.

- Escaping to fantasy worlds and daydreaming about ideal relationships.

Yes, I guess. I'm an author and I write paranormal fantasy books so escaping to fantasy is kind of my thing...

- Fear of abandonment.


Yes. So much so that I avoid people so I don't upset the into leaving, but then they feel pushed away anyway.

- Hardly speaking when forced to participate in a social situation.
Yes. I do this whenever I'm forced into a social situation.

- Hypervigilant - having an unhealthy obsession with the actions, thoughts and interests of others.
I wouldn't say obsession, but I do have an unhealthy concern over the thoughts of others.

- Passive-aggressive behaviour.
Sometimes, when I'm trying to rein in the openly angry outburst which relate to what I discussed in the BPD section of this post.

- Self-loathing and self-victimisation.
All the time. I hate myself. I blame myself for everything. Often it's unbearable.

- Tunnel vision - can only focus on a single concern while ignoring priorities.

I want to say no, but recently it's a yes.

I've read up on other personality disorders too, but none fit as well as BPD followed by AvPD. And the indicators that I've answered yes to all severly impact my life, my ability to socialise, leave the house, maintain family relationships, maintain friendships. I really do think there's something else going on apart from recurrent depressive disorder, but I'm terrified of mentioning it again in case I'm ignored, or told I'm being a hypochondriac. I'm scared of being judged if I ask for a third time. So what do I do? That's a question I can't answer, because part of my brain say's I need help, but another part of my brain also says no one will help anyway so I may as well stay quiet. Or better yet, die.

This is what happens when mental illness goes untreated for too long. Vulnerable peole whose minds are already working against them become ever more entrenched in their doubts and symptoms. But a lot of the time, it seems the government and wider world don't care about that. Physical illness is worthy of being treated. Mental illness? Not so much.

Pseudonymous Zombie
xxx